Breast Cancer

Here’s a long paragraph. Here we go: Just because cancer is “over,” that doesn’t mean it’s “over.” Mighty contributor Louise Pascut shares 10 things that help her thrive while living with breast cancer and its after-effects. — on The Mighty

“For a cancer patient, this is what their new normal looks like.” Here’s what it’s like going down the rabbit hole of “Cancerland.” — on The Mighty

Just because cancer is “over,” that doesn’t mean it’s “over.” Mighty contributor Louise Pascut shares 10 things that help her thrive while living with breast cancer and its after-effects. — on The Mighty

“For a cancer patient, this is what their new normal looks like.” Here’s what it’s like going down the rabbit hole of “Cancerland.” — on The Mighty

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EndocrineTumor

EyeCancer

MigraineBrainFog

RepetitiveMotionDisorders

SensoryOverload

SmithMagenisSyndrome

SUNCTHeadache

adhdinmen

crpsawareness

AcuteDisseminatedEncephalomyelitis

AlcoholAbuse

AutismAwareness

DialecticalBehaviorTherapy

FunctioningAddict

LGBTQ

Painsomnia

suicideattemptsurvivor

borderlinelife

Narcissitparent

MentalHealthHero

Allergies

AutismUncensored

BattenDisease

ChronicDepression

Chromosome12Microdeletion

ChronicMigraineSyndrome

ChronicRecurrentMultifocalOstomyelitisCRMO

CRESTDisease

SedativeDependence

SwallowingDisorders

Therapy

Chiari

AspergersSyndromeAwareness

BrainStemGlioma

CHD

ChronicIlless

CongenitalDyserythropoieticAnemia

FebrileSeizures

FibrodysplasiaOssificansProgressiva

GallbladderCancer

HEDS

HerpesGestationis

InfantileSpasms

IntrusiveThoughts

LeukocytoclasticVasculitis

MedianArcuateLigamentSyndrome

#Neutropenia

#Paresthesia

SanfilippoSyndrome

SubstanceAbuse

DepressionSigns

lyme

BPDProblems

DomesticAbuseSurvivor

#Anencephaly

CriDuChatSyndrome

FallopianTubeCancer

MultipleEndocrineNeoplasiaType1

Sex

SturgeWeberSyndrome

autoimmune

borderiinepersonality

I quit my job today. Not the first time and probably not the last time either. I literally said I don’t want to work here anymore and I left. Nobody tried to stop me, nobody asked me to come back or if I was okay. Nobody cared. I drove straight to my mothers office. Fight or flight usually ends in flight with me and almost always ends up on my mothers lap. I’d be lost without her. She of course knew what was going on as I ran into her office hysterically crying and instantly embraced me. Is there anything better than a mothers hug? Not really for me. She took me into a private room where we could talk and listened to my whole story through all the sobbing. By now she is pretty good at knowing what I am saying even when I am hysterical. My job was perfect, so I thought in the beginning. I started in May which is probably my favorite month of the year. It was two months exactly before my wedding day. Everyone was so welcoming and helpful. Being a fast learner I soon went from part time front desk to full time training specialist. Which was great since my husbands well paying job that had kept us afloat for so long was coming to an end. A year into my job my grammy got sick with #Cancer#Cancer of everything. She battled #BreastCancer#BreastCancer all my life and was such an incredible strong woman. This new cancer spread fast and even though she got all the treatments she faded quickly. About twice a week I would go to her house which was less than a mile from my office and help her in her wheelchair, into her car, buckle her in, make sure she was comfortable and watch her go off to treatment. My mother would meet her and my grandfather at the hospital and help them there then she would call me and say they are on the way home and I’d meet them back at their house, help her out of the car, into the wheelchair, into the house, into her chair. Make sure she had something to eat and drink, then head back to work. That lasted a for months but then the Dr. said the treatments weren’t helping and there was nothing they further they could do. So we just spent all the time we could together. She mostly stayed in her bed and I would go over and lay in bed with her and talk with her while she played with my hair and told me about her life travels and how I need to travel while I am young, before its too late. Then one day she couldn’t make it to the bathroom, even with the help of my aunt. I arrived while they were struggling and we just couldn’t do it alone. We had to call hospice. Me, my mother, my aunt, and my cousin all stayed at her side the last week of her life. It was the hardest thing I’ve ever experienced. It’s not something I wish anyone to go through. I returned to work the week after her funeral. I was inconsolable. My dearest grammy was lost forever. I did not know how to deal with the #Grief#Grief. I started making mistakes at work, i was distraught and distracted. I had hysterical fits almost every day. I couldn’t stop thinking about how I would never see her beautiful face again. So I started on a very strong anti-depressant. Stronger than the one I’ve always taken for my #Depression#Depression and #Anxiety#Anxiety. It helped with the hysterical fits but I found my memory playing tricks on me. I had to stay on it though, there was no going back to the hysteria. I’ve always had a strong sense of others emotions and energies. I am very aware when someone stops liking me and I am unable to hide my own feelings. I wear them on my sleeve because that is the only way I know how. People noticed of course when I ceased to be my happy bubbly self. I began being left out of things at work, conversations, fun little breaks I was used to in the past. I no longer felt welcome to participate in the lives of my once very fond of me bosses. I started getting in trouble for making mistakes, told I needed to get my act together; told I was making the company look bad. I tried and tried to be the old me but she was gone. The new me made mistakes, and got micromanaged and eventually bullied and outcast. Several times I tried to plead my case to my bosses, I told them I was grieving and I was getting help. They continued to harass me and leave me out of things. this only made my mistakes happen more often. I began looking for a new job, a new start and some of my coworkers were as well. They too had been treated poorly and wanted out. Months passed and today I was called into the bosses office where I was told things such as people are supposed to get better at their job over time not worse and why are you still working here if you aren’t happy? When I told them I felt unliked and outcast they practically laughed in my face. Told me I was creating a negative environment and this isn’t highschool, we are your bosses. I guess that gives them the right to treat me like dirt? After a good half hour of being harassed by them and made felt ridiculous for any feelings I had, I couldn’t take it anymore. I said I don’t want to work here anymore and I walked out of the office. I went to my desk, I grabbed my things and I got in my jeep and drove straight to my mothers office. Nobody stopped me, nobody asked if I was coming back, nobody cared. I thought I’d feel better knowing I never have to go back to that negative space but I just feel sad. I feel like those people will never learn or care. I also feel sad that they have no clue about the pains of my depression. No idea that some days I felt like dying would be better than dealing with the depression. They have no idea what it’s like to be me and they never took a chance to hear me out or offer help. And that to me is just so sad. I’m sad that they will continue to bully others that come to work there after me and that they will never truly know what its like to be good bosses.

#Depression needs a symbol too, so I designed these bracelets By Lisa Hughes – For The Mighty
March 20, 2017 My name is Lisa and I live with depression.
Some days are hard — like, “I can’t find the energy to breathe” hard. While other days I almost forget about it and am surprised by how easily the day seems to pass.
But whether it’s smacking me in the face, or hanging out on my periphery, I am constantly trying to keep depression from parking over my head and in my heart. Because when it parks, it can stay for a while.
In the fall of 2013, a depressive episode caught me by surprise. I thought I had dealt with it. I had gone to therapy for years and learned tools to manage. One of them was yoga, which I embraced, becoming a certified instructor (a practice that I continue to this day).
So when the 2013 episode hit, I was shocked and angry. There was absolutely no reason for this to be happening. I had experienced no trauma. I had two healthy kids and a loving husband. A generous family. I had the best life.
Once the shock wore off, the anger deepened. The type of anger that creates a fire inside your body. I got mad that it wasn’t going away. I got even madder after I told a select few friends and they reacted by saying things like “Oh, it could be worse, you’ve had so much opportunity,” or “Just take a nap. You’ll feel better when you get up.” I began to feel like it was more socially acceptable to be an alcoholic than it was to suffer from . It didn’t make sense to me.
What I eventually realized was that most people just didn’t understand . And I realized I was glad that they didn’t understand; I wouldn’t wish this on anyone. However, it made me feel even more alone. I knew I couldn’t be the only person in this situation.
So, I decided to channel this anger into creativity. I wanted to share my experience with others, and I wanted a symbol that united us all. Just like #BreastCancer survivors have the universally-recognized pink ribbons and those touched by AIDS have red ribbons, I wanted a symbol for . I searched the internet over and over but I couldn’t find a thing. So I came up with the idea to make Depression Awareness Bracelets. With the help of my friend, artist Wendy Glaess, I designed my own logo, an enso, which in Zen Buddhism, is a circle that is hand-drawn in one or two uninhibited brushstrokes to express a moment when the mind is free to let the body create. I used my brushstroke to create the enso symbol and then added a tear drop inside. For me, it symbolizes enlightenment hugging sadness.
I stamped the enso symbol on a dark brown leather band and then secured it with a brass buckle. The Depression Awareness Bracelets were born. It’s a simple and stylish accessory, fit for a woman or a man. I now make each bracelet by hand in my small studio in my home in Rochester, New York. I have received orders from all over the country. I even got it trademarked! I donate 10 percent of the proceeds from the bracelet sales to the Mental Health Association.
I created the website www.DepressionBracelets.com to sell the bracelets, but it has turned into so much more, a community really. It now includes a blog and a photo project I call The FACE Photo Project. The photo project is an ongoing series of portraits that I have taken of people I know who are touched by . The project allows me to indulge my love of photography, while allowing others who struggle like I do to join me in trying to take away the shame and stigmas associated with .
My objective for these various initiatives is to let people know they are not alone, and to know that if we all step out of hiding, we can see each other, and then be pillars of support. Hearing others’ stories about and sharing mine helps to make me feel so-not-alone. When you hide, there is shame. Stepping out of hiding eliminates this shame. It brings acceptance, and with it a community that understands. The bracelet has become a conversation starter, an opportunity to move past the shame. If we could be more open, we could feel less alone.
My dream is that one day I will be walking through a grocery store, or picking up my kids from school, and that I will see someone else wearing the bracelet. Without saying a word, we notice one another. Eye contact is made and we get each other. We know. We connect.
Awareness Bracelets are available for purchase here:
http://www.depressionbracelets.com/
10% of proceeds from all bracelet sales are donated to the Mental Health Association.

Autism
Awareness Month is here and for most of you, this is yet another cause in the
convoluted calendar of month-long observances –   #BreastCancer#BreastCancer…World Aids
Day… Food Allergy… Alzheimers. .. LGBT… #Suicide#Suicide Prevention…  Rabies…
#Stuttering#Stuttering.
Unless a
particular  health concern affects you
personally, I would guess this is all just noise.  Sure, you may have run
a 5k for #MultipleSclerosis#MultipleSclerosis or rounded your credit card bill up to the next
dollar to contribute towards Feeding America.  You bought that bright pink
Swell bottle in honor of Breast Cancer Awareness month in October.  Even
the NFL Rocks pink cleats in October.  
However,
the “awareness’ has developed into opportunities for monetary, tangible
donations rather than initiating or educating the public on the cause and why
you should give a damn.   Of course foundations need the capital to
move forward with research and development, but the constant parade of these
fundraisers can be daunting. For me, autism
became more than just a colorful bumper sticker, (shaped like a ribbon holding
puzzle pieces) nearly 3 years ago, when my instinct (followed by a diagnosis)
told me my 1 year-old son was on the spectrum.  That instinct was followed
by an obsessive consumption in educating myself beyond the little knowledge or
should I say ‘stereotypes’ that I possessed about autism, such as  the
social awkwardness, lack of empathy, savant-like abilities, Rainman.  When a health
concern infiltrates you or a loved one, you better believe that cause becomes
more than relevant.  
I have to care about
.  My son’s success depends upon it.   So why should you care? Let me
drop those stats. Prevalence is 1 out of 68 people, reported by the CDC in
2016.  1 out of 42 boys.  That is 3.5 million+ individuals in the
US.   And for the first time this year, the prevalence did NOT
increase.   At this frequency, you will meet and know someone
affected by (if you don’t already).
Sesame
Street thought it was so important that they welcomed a new Muppet, Julia, to
their cast this year.  It’s kind of a big deal.   Autism has
become so mainstream that a character was introduced into the Big Bird and Elmo
crew.  Julia, I trust that you will broaden those social boundaries that
are currently deemed as weird.  Arm flapping, spinning in circles,
sensitivity to textures or loud sounds, repetitively opening and closing a
door, asking the same question 7 times in a row and ignoring the answer.
Yes, this behavior is unusual which is why autistic children have
been bullied and ostracized for decades.  Julia has taken on the
influential role as a public figure to educate the Sesame Street audience, both
children and parents, about .  Normalizing is an ambitious goal
and I am completely onboard, but familiarizing children to the disorder is an
important first step.  The ABC’s are an essential skill for our children
to learn, but so is empathy, tolerance, and embracing others with
differences.  If you think kids won’t “get” Julia, you are underestimating
your child’s intelligence. is
not curable.   There is no surgery, medication, or therapy that will
erase this neurological disorder.    It won’t go into remission
and it can’t be avoided by adhering to a specific diet, exercise regimen, or
abstinence of habit.
In 2015, ’s cost to society
was expected to top around $265 billion.  This number is only bound to
grow. What
are you paying for?  For one, educational resources.  IDEA
(Individuals with Disabilities Educational Act) ensures that students with
disabilities are provided with a free education.  Last week, the Supreme
Court ruled in favor of a special education student (www.npr.org/sections/ed/2017/03/22/521094752/the-supreme-cou...).
This decision will reflect all children that need IEP’s, as it requires a tailored
program to meet the specific needs of each student.  A plan may call for a
simple 30 minutes of speech therapy per week or the necessity for the student
to be transported to a private, specialized school for an education.  The
escalated cost for any of these services is dependent upon federal and state
funding (aka taxpayer).   · Another education topic—the
inclusion classroom (special education students being integrated into a general
classroom setting).  This model is becoming very common in the public
school systems, and while I strongly support the concept, I also believe that
teachers need the appropriate training along with support (additional aides or
assistants) for it to be successful for ALL students.   If your child
doesn’t require an IEP, the quality of their education can still be impacted by
the resources (or lack of) that are available in the classroom.  Simply
put, the public school system is underfunded and overwhelmed. This is my PSA
for you to pay attention to any legislature regarding special education.
Vote for public officials who care about improving the quality of education for
ALL our children,  #Disability#Disability or not. Other costs to consider include
residential and In-home care, along with employment and medical support.
Recent surveys from the National Autistic Society showed only 32% of autistic
adults are employed and only half of those are working full time.
That leaves over 2 million without  ANY type of work, which is equivalent to the
entire population of New Mexico.  Recently, companies, which include
Microsoft, SAP, Ernst & Young, Hewlett Packard and JP Morgan, have made an
initiative to hire people on the spectrum claiming they are looking to
create a “neurodiverse” workforce.   Let’s be real—these companies
are hiring the highly-functioning Aspies that have been employed in Silicon
Valley for years prior.  Be aware that 2 million people account for a large
majority of the unemployed adults in the US, which was 7.5 million altogether
in February of 2017.
President
Trump has demonstrated an interest in .  During the debates, he
professed his belief that vaccinations are the cause of the “epidemic.”
Obviously he is Team Anti-Vax, a stance which is quite dangerous for the leader
of our country to pronounce to the world.
That belief originates from ONE study conducted by doctor Andrew
Wakefield in 1998. Trump has appointed and surrounded himself with staff who
are not advocates of special education.  Yes,
I’m looking at you, Betsy DeVos.  Although no legislation has officially
been passed that will affect the community, I will be paying attention
to every move he makes for the next 4 years.  I’m wary to entrust a man
who blatantly mocked a disabled reporter and have mercy on those policymakers
who decide to oppose special education rights.  and special needs
parents are resilient warriors.  They won’t go down without putting in the
good fight to obtain justice. Our world is still trying to
understand itself. Scientists continue to probe into the causes.
Educators and doctors learn through trial and error the most successful
treatments and interventions.  Advocates
and politicians decide on what policies and environments will build the
framework for those on the spectrum to succeed.  The experts keep
persevering, and is our humankind.  Your grocery cashier, the man
who spots you at the gym, the boy on your son’s lacrosse team, the Starbuck’s
barista who remembers your order of a Double Shot Skinny Latte.  
Four years ago, I probably would
have passed over this post. was a disorder that affected other people,
but not me.  There was no chance my child was going to be that 1 out of
68. Now, there isn’t a day that goes by that doesn’t cross my mind.
I’m reminded when I put my son on the bus so he can attend his PreK inclusion
classroom, or when he’s frantically searching for the yellow soccer ball he has
to constantly carry in his hand 24/7.   I’m reminded when he refuses
to eat a Goldfish because of its crunchy texture, or when I find him overly
transfixed with his shadow.  My son is
rambunctious, cheerful, perceptive, a nurturing brother to his siblings—truly a
sweet child.   I feel ashamed and appalled that I didn’t want that
part of him.  That autistic part.   isn’t something you are
trying to avoid or pity.  isn’t the justification you attribute
towards your colleague who won’t make direct eye contact.  is just
a piece of what comprises an individual.
You know that ‘weird ‘ kid that lives in the white
house with red shutters down the street?  That ‘weird’ may be the uncontrollable,
innate piece of him.
This month make a special effort
to reach out to someone with .   It
may be the beginning of a meaningful, divine relationship for both of you.